ROS1ders – How

How

To create cell cultures, we need living cancer cells donated by people with ROS1 lung cancer. If you have an upcoming biopsy, pleural fluid drainage or cancer surgery, please contact us (ros1@long.umcg.nl). We will contact you and your attending doctor about the possibilities. If possible, we will make arrangements in advance to donate the excess fresh tumour tissue and/or pleural fluid to OncoLifes at the UMCG. We will take the time to inform you and to go through the consent form. 

What happens if you participate in this scientific research? 

The instruction is also available in Spanish and German.

Prior to your biopsy, pleural fluid drainage or cancer surgery, you will receive a test kit for you to take to the hospital. Please make sure to follow the preserve instructions of the test kit.   

 

The test kit for a biopsy or cancer surgery contains:

    • Tube with fluid to put in the biopsy or tissue;
  • Cooling elements;
  • Return shipping label;
  • Instructions for your doctor; 
  • Preserve instructions for shipping the kit back to us.

 

The test kit for pleural effusion drainage contains:

    • Empty tube to put in the pleural effusion;
  • Cooling elements;
    • Return shipping label;
  • Instructions for your doctor; 
  • Preserve instructions for shipping the kit back to us.

 

Once the material is collected, we will make sure there is a courier at your treating hospital that will deliver the material to the UMCG. This all will not bring you, or your treating hospital, additional costs. 

 

Are you considering to participate? Don’t hesitate to contact us!

Please contact physician researcher drs. F. Zwierenga and pulmonologist dr. A. van der Wekken to answer all your questions and provide you with additional information about the scientific research.  

Email: ros1@long.umcg.nl 

Are you hesitating and would like to talk to a fellow ROS1der? You can contact Merel Hennink, the founder of ‘Stichting Merels Wereld’ through this website, or you can send an email to her: stichtingmerelswereld@gmail.com

Why
Who